Cassandra Disque | May 30, 2002
I am getting depressed really quickly. It started yesterday, and I have just been sinking really fast. I guess it is to be expected, and I am trying to fight it, I really am. I could not get to sleep last night. I kept remembering what it felt like when the doctor pressed my trigger [...]
Cassandra Disque | May 29, 2002
18 out of 18 touch points tested positive. Touching the one in my left side above my hip brought me to tears. Several others made me jump so hard that I ripped my cotton gown. For the rest of my goddamn life, I am going to have FMS. Every day for the rest of my [...]
Cassandra Disque | May 29, 2002
Saw the rheumatologist today. He confirmed every other doctor’s diagnosis. I have fibromyalgia. You may now return to your regularly scheduled programming.
Cassandra Disque | May 29, 2002
I am about to leave for the rheumatologist. More fate decided. Stuck between a rock and a hard place – the social security office is so backed up that I cannot even get an appointment because they do not make them more than two months in advance or something. I was told to wait at [...]
Cassandra Disque | May 21, 2002
Today’s appointment was what yesterday’s four minutes should have been. A half hour consultation about health history, current medications and doctors, and payment options. The SSI papertrail has begun under the diagnosis of fibermyalgia. This means I cannot officially work and declare income on my taxes for the next one to two years. Fortunately, my [...]
Since 1996, my life has been a long journey of visiting one doctor after another. I look more or less fine, but I'm not. My daily pill count is like playing the dozens with a hospice patient. One doctor will say I'm doomed, and send me to another for treatment, but the treating doctor will find nothing within his or her area of practice that can be treated.
My life is better than a comedy, better than a drama. Anyone who has done this knows what I mean when I say that you have to not only know the rules, but also play the part in order to be allowed in the game. Most people find what we go through in the medical merry-go-round to be unbelievable, which is why I call it "The Drag of Gimp."
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